New Delhi: Indraprastha Apollo Hospitals, New Delhi organised an awareness event around the rising case of thalassemia patients across India and the advanced media treatment available that provides a cure for all.
The initiative was led by, P Shivakumar, Managing Director, Indraprastha Apollo Hospitals, New Delhi, Dr Gaurav Kharya, Advisor, Bone Marrow Transplant & Cellular Therapy and Senior Consultant, Paediatric Haematology, Oncology & Immunology, Indraprastha Apollo Hospital, New Delhi, Dr Amita Mahajan, Senior Consultant, Paediatrics Oncology and Haematology, Indraprastha Apollo Hospital, New Delhi and Dr Shanthi Bansal, Director Medical Services, Indraprastha Apollo Hospitals. The conference focused on the signs and symptoms, treatment modalities, and diagnostic tests to promote treatment for thalassemia.
Addressing the conference, Dr Kharya said, “Thalassemia major is a preventable illness, thus more efforts and awareness is required to help people understand the ways of preventing thalassemia. Having said this there are a large number of kids who continue to suffer from thalassemia with huge psychological and financial burden leading to poor quality of life and decreased life expectancy. Just like being preventable, for kids affected with thalassemia major, it is very much a curable disease by offering a bone marrow transplant using either hla identical or haploidentical donor. The purpose of this conference is to spread awareness and allay anxiety about BMT as a cure for thalassemia major.”Dr Mahajan added, “When we discuss thalassemia, we know that people are not only very fearful but also there are a lot of misconceptions regarding its treatment. While we have observed major advances in the management of thalassemia, however, myths and misconceptions regarding treatment and regarding care for the patients and their caregivers can compromise their quality of life in a detrimental way. The importance of awareness programmes that highlight the latest developments in thalassemia care and treatment cannot be overstated. Additionally, it is crucial for the community to be informed about the preventive measures available for this disease.”
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